hey guys its me again asking for any help if any you can give if you cant help i understand everyone is in a tight spot now
but at the bottom of the post will be my paypal address for any donations you can spare
like i said anything will help $1 to $100,000 whatever is wonderful thank you all and god bless
Alittle About My little girl
hey like in the post before some know about my kids and some dont
this for the ones who dont know
my little girl is a wonderful 4 year old
i would never trade anything for any of my kids they are my world
she was born with a brain bleed which cause her to have massive siezures
which resulted in her going into a coma for most of her little life
they told us she may never wake up but from us having our first son we knew we could not give up on her, we would never accept the fact our girl would be in a coma for life so we prayed and stayed with her the whole time i tried to work but lost many jobs from the stress of worring and due to the fact i could not work everyday so they just let me go
i am not saying it is her fault or anyones i would never do that i love her
it is just that job owners dont care you are just another person they have they have a line of people that can take your place
Cerebral hemorrhage
A cerebral hemorrhage (or intracerebral hemorrhage, ICH), is a subtype of intracranial hemorrhage that occurs within the brain tissue itself. Intracerebral hemorrhage can be caused by brain trauma, or it can occur spontaneously in hemorrhagic stroke. Non-traumatic intracerebral haemorrhage is a spontaneous bleeding into the brain tissue.[1]
A cerebral hemorrhage is an intra-axial hemorrhage; that is, it occurs within the brain tissue rather than outside of it. The other category of intracranial hemorrhage is extra-axial hemorrhage, such as epidural, subdural, and subarachnoid hematomas, which all occur within the skull but outside of the brain tissue. There are two main kinds of intra-axial hemorrhages: intraparenchymal hemorrhage and intraventricular hemorrhages. As with other types of hemorrhages within the skull, intraparenchymal bleeds are a serious medical emergency because they can increase intracranial pressure. The mortality rate for intraparenchymal bleeds is over 40%
Causes:
Intracerebral bleeds are the second most common cause of stroke, accounting for 30–60% of hospital admissions for stroke.[1] High blood pressure raises the risk of spontaneous intracerebral hemorrhage by two to six times.[1] More common in adults than in children, intraparenchymal bleeds due to trauma are usually due to penetrating head trauma, but can also be due to depressed skull fractures, acceleration-deceleration trauma,[5][6][7] rupture of an aneurysm or arteriovenous malformation (AVM), and bleeding within a tumor. A very small proportion is due to cerebral venous sinus thrombosis.
she also has Hydrocephalus
Hydrocephalus (pronounced /ˌhaɪdrɵˈsɛfələs/) is a term derived from the Greek words "hydro" meaning water, and "cephalus" meaning head, and this condition is sometimes known as "water on the brain". People with hydrocephalus have abnormal accumulation of cerebrospinal fluid (CSF) in the ventricles, or cavities, of the brain. This may cause increased intracranial pressure inside the skull and progressive enlargement of the head, convulsion, and mental disability. Hydrocephalus can also cause death.
Hydrocephalus is usually due to blockage of CSF outflow in the ventricles or in the subarachnoid space over the brain. In a person without hydrocephalus, CSF continuously circulates through the brain, its ventricles and the spinal cord and is continuously drained away into the circulatory system. Alternatively, the condition may result from an overproduction of the CSF fluid, from a congenital malformation blocking normal drainage of the fluid, or from complications of head injuries or infections.[1]
Regardless of cause, the fluid accumulates in the ventricles. Compression of the brain by the accumulating fluid eventually may cause convulsions and mental retardation. These signs occur sooner in adults, whose skulls no longer are able to expand to accommodate the increasing fluid volume within. Fetuses, infants, and young children with hydrocephalus typically have an abnormally large head, excluding the face, because the pressure of the fluid causes the individual skull bones — which have yet to fuse — to bulge outward at their juncture points. Another medical sign, in infants, is a characteristic fixed downward gaze with whites of the eyes showing above the iris, as though the infant were trying to examine its own lower eyelids.[2] Hydrocephalus occurs in about one out of every 1000 live births[3] and was routinely fatal until surgical techniques for shunting the excess fluid out of the central nervous system and into the blood or abdomen were developed. Hydrocephalus is detectable during prenatal ultrasound examinations.
Usually, hydrocephalus does not cause any intellectual disability if recognized and properly treated. A massive degree of hydrocephalus rarely exists in typically functioning people, though such a rarity may occur if onset is gradual rather than sudden.[
she is on oxygen and a spo2 moniter
she has a shunt to drain off the fluid from her brain
most of her brain is dead but she is making wonderful improvements
she is 3 but they say her brain is at about 1 1/2 years right now so she is learning to crawl at the moment but we are kinda scared because she is blind we dont want her to hurt herself
as my son she to has a G-tube in her tummy she eats through
she also has sleep apnia so she is on a moniter for that as well
she is currently on 6-8 meds for all of her problems but we are hopeful she will someday make a great change for the better
my son is 11 years old paralized from the waist down and he is on a ventilator to help him breath he has a trac in his neck because his airway is unstable for him to breath
he also has a G-Tube in his tummy that he eats through
the main reason for all of his medical problems is he has a rare medical disease called
Atelosteogenesis Type 2 here is alittle about it
Atelosteogenesis, type II is a severe disorder of cartilage and bone development. It is extremely rare, and infants with the disorder are usually stillborn, however those that that survive birth die soon after from respiratory failure
Infants born with this condition have very short arms and legs, a narrow chest, and a prominent, rounded abdomen. This disorder is also characterized by an opening in the roof of the mouth (cleft palate), distinctive facial features, an inward- and downward-turning foot (clubfoot), and unusually positioned thumbs (hitchhiker thumbs).
The signs and symptoms of atelosteogenesis, type 2 are similar to those of another skeletal disorder called diastrophic dysplasia. Atelosteogenesis, type 2 tends to be more severe, however.
Atelosteogenesis, type 2 is one of a spectrum of skeletal disorders caused by mutations in the SLC26A2 gene. The protein made by this gene is essential for the normal development of cartilage and for its conversion to bone. Mutations in the SLC26A2 gene disrupt the structure of developing cartilage, preventing bones from forming properly and resulting in the skeletal problems characteristic of atelosteogenesis, type 2.
This condition is an autosomal recessive disorder, which means the defective gene is located on an autosome, and two copies of the gene - one from each parent - must be inherited for a child to be born with the disorder. The parents of a child with an autosomal recessive disorder are not affected by disorder, but are carriers of one copy of the altered gene.
like i said we can really use the money any little bit will help thank you for reading my story please send all donations to paypal address con2tion@gmail.com
